Wednesday, August 12, 2009

Another trip to Houston....

Well we have just gotten back from another quick trip to Texas Children's in Houston. We left last night after Shawn got off work, at some dinner at Buc-ee's and rolled into Houston around 8.30ish.....MJ's Endocrinologist only works on Wednesday so we will most likely make it an every 4-6 month routine........We do not mind the drive so much, love Buc-ees and the girls like staying in the motel....Maybe one time we will take some days off and actually do some sight seeing....Any who, MJ's appointment went well. We had her blood work done before we left and it all came back normal, this is something we will have to do yearly....the only thing that stood out was that her height is beginning to fall off her original growth chart, she is still in the 19% for her age (down from the 33% at her last appt 6 months ago).....We knew it was only a matter of time for this to happen....most TS girls fall off the chart at age 2-3......We did ask the endocrinologist about how tall MJ may be w/o any treatment and it is a rough calculation but we are looking at 4'8" for a final height. We take her back in December and will have some important research to do on Growth Hormone Therapy before then.....Most likely she will start Growth Hormone Therapy in Dec if we choose......We have learned that there are more benefits then just height increase for girls with TS and I was happy to see that our Drug Prescription Insurance covers most of the brand names of HgH.......We would most likely just have to pay our co-pay depending on which one our doctor prescribes......I have to admit the idea of MJ getting a shot everyday doesn't thrill me......but I also do not want her later in life questioning why we didn't try HGH to help her be taller.....Quality of life also comes into play.....Oh the decisions we get to make as parents.....

5 comments:

Grandma Paula said...

Whatever you do will be right for MJ.Thanks for the information. She will get use to the shots if that is the way you go.
Love Mom

4 Cougs said...

Maybe all the tough decisions you have to make now will lesson the load in the future! We could hope!

Erin said...

so glad to hear the appt went well! i bet the girls loved the little outing!

Anonymous said...

I agree with Grandma P. Maybe if she get's the shots it could be some kind of treat or activity for all after a week or something...poor wording but you are used to translating me. KB and LG could hold her hand and be supportive, a lesson of love for all. Thanks for the update!
L, NA

Cara Tebo said...

Not that it matters "what other people do" but I have a friend who gave her son HGH and things worked well. I believe they had a little routine down every morning. Glad to hear your insurance covers it! That's a relief.